We are close to 13 years of writing about Life with Multiple Sclerosis. With an average of over two posts per week for most of that time, we’ve covered a lot of the causes of multiple sclerosis.
However, I am amazed when something I write strikes a chord with readers who are Reply in large numbers.
That was the case last week when I wrote about having my last dinner party.
Readers respond when I leave my guard
The outpouring of goodwill and sympathy was unexpected. This isn’t the first time I’ve jotted down what I felt was a neglected piece that likely resonated too personal to resonate, only to find that I had a symmetrical bow that resonated throughout our society.
Usually when I’m in those personal places in my writing I think members of our community hear their thoughts in the words I’ve written. When I put on caution, readers can see the bruises I also have behind raised gloves.
Not nice to see; I’m sure about that. You took many square punches from our opponent. It has landed blow upon blow that shocked me and even sent me into the cloth on more occasions than anyone but my wife, Karen knows.
Related: #YouDontLookSick: The private links for who they are
But not everyone wants to see signs of MS
Some people don’t like seeing the signs of abuse that MS has inflicted on us, even those who suffer from the disease. I get called out regularly for being so negative about my life with MS. I’m not “butterfly farts and rhino bull” (my words) for the “attitude is everything” crowd.
The truth is the truth.
If you will take me seriously by our intelligent society, I must tell the truth in troubled times; Otherwise, how do I believe in the righteous?
MS does things for me. MS takes things from me. I am learning to adapt. I take back what I can. But I cringe from time to time, and that’s just a fact.
People who know me accept me for who I am
For me and my package, I’m fine. I do what I can, when I can. I’ve expanded my limits, but not at the cost of falling off the edge of the envelope anymore. Our wheat dogs know they won’t get me by their side when they run along the beach, but I will be in sight and with them in their high spirits.
Karen understands and accepts that she has had to carry a great deal of burden when it comes to matters that require awareness. She comforts me in my corner of the MS boxing ring… but she knows she has to stay behind the ropes when I line up for the next round.
Related: Happy though MS
I’m living a good life, but I’m not going to cover it
I’m living a good life, even with MS waiting for me when I answer the bell. I do not consider myself weak in combat. I excel on every scorecard except for one.
MS won’t win that judge’s card, although MS has hit that hard from time to time.
I guess what I’m trying to say is that I don’t encapsulate my life with MS, and it has come to my attention that our community in life with MS is fine with that.
I wish you and your family the best of health.
cheers,
trevis
my book, the chef cutavailable at Amazon. follow me on Life With MS Facebook page and on Twitterand read more Life with MS.
